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Wednesday, May 1, 2013
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Sunday, April 15, 2012
Saturday, April 14, 2012
I can't believe it but next week on April 20th will be River's 2nd birthday. He's growing up so much and has the most fun personality ever. He is a little social butterfly and says "hi" to everyone he sees. He's making progress in his eating skills and is willing to try almost anything. He still won't eat very much of anything, but at least he's open to different flavors and textures. His favorite kinds of foods are SPICY. He loved Jalepeno chips which is crazy to me, but hey if he'll eat it, we'll keep giving it! He still can't go longer than 30 minutes to an hour off of his feeds before his blood sugar drops too low. He just wears his little backpack all day and doesn't seem to mind it at all. He is just amazing and I love him more and more every day.
We are having a Sesame Street themed party for River because he loves Elmo.
We are having a Sesame Street themed party for River because he loves Elmo.
Sunday, March 4, 2012
Saturday, March 3, 2012
Calm
Wow, how did I let so much time pass since my last post? Shame on me! Overall, since the last post things have been....calm. Calm is a great thing around the Ross house. River is doing great and talking more about more every day. On our way home from one of our favorite dinner spots, E.Scott and I were trying to count how many words River can say and it has to be around 40-50 words. He understands pretty much everything we say though.
We did have a neurology appointment with River yesterday and it went really well. Months ago, I was concerned that he may be having absence seizures because he would just stare off into space for 10-15 seconds randomly throughout the day. Of course the EEG that we had done came back normal as previously reported. The neurologist thinks River is doing great and he doesn't suspect that he was having absence seizures. He was very intrigued by Congenital Hyperinsulinism and even read up on it before seeing River. He was very happy with how River is doing and said he is right on track developmentally!
Since our last post, here are some of the fun things River has been up to:
Went to the San Antonio rodeo ground with grandma, grandpa, and daddy
Went to the New Braunfels Childrens Museum with mommy, daddy, and mimi (I highly recommend this place to all the mommies out there!)
Answering questions with "Yeah" or "No"
Being Independent and Inquisitive
We've had several play dates with other kiddos: Preston, Lily, and David
Playing his Drum Set every day (pictures to come) This is his absolute favorite thing to do
Here is a picture of River with his new friend Connor:
We did have a neurology appointment with River yesterday and it went really well. Months ago, I was concerned that he may be having absence seizures because he would just stare off into space for 10-15 seconds randomly throughout the day. Of course the EEG that we had done came back normal as previously reported. The neurologist thinks River is doing great and he doesn't suspect that he was having absence seizures. He was very intrigued by Congenital Hyperinsulinism and even read up on it before seeing River. He was very happy with how River is doing and said he is right on track developmentally!
Since our last post, here are some of the fun things River has been up to:
Went to the San Antonio rodeo ground with grandma, grandpa, and daddy
Went to the New Braunfels Childrens Museum with mommy, daddy, and mimi (I highly recommend this place to all the mommies out there!)
Answering questions with "Yeah" or "No"
Being Independent and Inquisitive
We've had several play dates with other kiddos: Preston, Lily, and David
Playing his Drum Set every day (pictures to come) This is his absolute favorite thing to do
Here is a picture of River with his new friend Connor:
Sunday, January 22, 2012
Sunday, January 8, 2012
Christmas in Dallas
We had a wonderful Christmas in Dallas. The night before we left, Mimi and Opi (my parents) came over and had an early Christmas dinner and we opened presents. Mimi and Opi got River a slide and I think this was his favorite present of all.
We stayed with E.Scott's parents for a week and got to see his brother's family. We only get to see them once a year around Christmas time and we always enjoy spending time with Chad, Symbra, and their two girls, Aruna and Annika. River had a busy week and got tons of good presents. First we went to the Dallas Zoo with grandma and saw elephants, giraffes, penguins, pigs, goats, and monkeys. River had a blast! I think his favorite part was getting to kiss the goats (pictures to follow). The second day we went to the Dallas Children's museum with grandma and grandpa. Boy was it crowded. River just ran in circles and explored. More than anything, he enjoyed running. His second favorite thing to do was play the drums and I must say, he is pretty good at the drums. He has a real drum at home so he gets a lot of practice. Then came Christmas Eve and Christmas day. Chad and his family arrived the Tuesday evening after Christmas. River had so much fun playing with grandma and his two cousins the rest of the week. They went to the park, fed the ducks, rode the train at Firewheel shopping center, and went to the coolest wooden playground ever. River really enjoyed all the attention he got from everyone. Ever since we've been home, he just seems bored!
Here are A LOT of pictures of our Christmas vacation:
Hanging with Uncle Chad, Annika, and Aruna
We stayed with E.Scott's parents for a week and got to see his brother's family. We only get to see them once a year around Christmas time and we always enjoy spending time with Chad, Symbra, and their two girls, Aruna and Annika. River had a busy week and got tons of good presents. First we went to the Dallas Zoo with grandma and saw elephants, giraffes, penguins, pigs, goats, and monkeys. River had a blast! I think his favorite part was getting to kiss the goats (pictures to follow). The second day we went to the Dallas Children's museum with grandma and grandpa. Boy was it crowded. River just ran in circles and explored. More than anything, he enjoyed running. His second favorite thing to do was play the drums and I must say, he is pretty good at the drums. He has a real drum at home so he gets a lot of practice. Then came Christmas Eve and Christmas day. Chad and his family arrived the Tuesday evening after Christmas. River had so much fun playing with grandma and his two cousins the rest of the week. They went to the park, fed the ducks, rode the train at Firewheel shopping center, and went to the coolest wooden playground ever. River really enjoyed all the attention he got from everyone. Ever since we've been home, he just seems bored!
Here are A LOT of pictures of our Christmas vacation:
River in his new Christmas PJ's
River's awesome slide from Mimi and Opi
Kisses from Grandma ;)
Ho Ho Ho Merry Christmas, Santa Hat made by Granny
Rollercoaster from Santa
hanging with Granpa at the Children's Museum
Fun with Grandma and the drums
Little Firefighter
Cousin Aruna
Cousin Annika
Such great memories!! Christmas always seems to pass by too fast.
Tuesday, December 20, 2011
Have a Holly Jolly Christmas!
We hope all of our friends and family have a very Merry Christmas!! May you find peace and joy in 2012!
Sunday, December 18, 2011
EEG and Ear Tube Surgery
We took River to Dell Children's Hospital 2 weeks ago to have an EEG done to find out if he is having absence seizures. ""Electroencephalography (EEG) is the recording of electrical activity along the scalp. EEG measures voltage fluctuations resulting from ionic current flows within the neurons of the brain," according to wikipedia. Prior to the procedure, they told us that River would need to lay still for 1.5 hours while hooked to the electrodes that monitor his brain activity. For those that know River, know that he is extremely active and it is difficult to get him to lay still for 5 minutes much less an hour and a half! We were a bit concerned going in, but knew we would just find a way to make it work and hope for the best. I must say that I was very impressed with the way River handled the procedure. The first part was the most difficult. Daddy sat on the bed with him and helped the nurse hold him still while she applied about 30 electrodes with a gel to his scalp and forehead. It took about 45 minutes just to get him all connected so they could monitor him. It turns out that they only had to monitor his brain activity for 30 minutes, whew!! The 1.5 hours we were quoted on the phone included the time it took just to get all the electrodes connected. That made us feel much better. River actually fell asleep once he was all hooked up which made the 30 minutes fly by. We felt bad having to wake him up when it was all over. He was so strong and such a trooper, as always! We got the results of the EEG a couple of days later and everything came back normal! It was wonderful news. Grandma said it was reason to celebrate and throw a party!
This past week River had surgery to place tubes in his ears. We admitted him the night before because he needed to fast for at least 6 hours before surgery and that is not possible for River. River usually can only make it 30 minutes - 1 hour of fasting before his blood sugar drops below 70. At midnight they started a dextrose IV to keep his blood sugar stable while the turned off his g-tube feeds. His blood sugar stayed stable during and after the switch to IV fluids!! I was worried that River would have trouble sleeping in the hospital but he slept like a log, even through several blood draws to test his blood sugar. Mom and Dad on the other hand, slept on the couch in the room and didn't get much sleep. His surgery was at 7am in the morning and he didn't even cry when the nurses took him away to give him the anesthesia. He is so independent and completely fine without mommy and daddy :( The surgery lasted about 20 minutes and he did great! We got discharged from the hospital later that morning. We had to get discharged from his original room since he was admitted as an inpatient. He has adjusted to the tubes wonderfully and his sinus congestion that he's had for the past couple of weeks is finally clearing up.
We took River up to the mall to see Santa and ride the Choo Choo train. He had so much fun riding the train and rode it all by himself. He even clapped when the ride was over, it was adorable! I posted a little video of the end so you can see the end of his train ride and applause.
This past week River had surgery to place tubes in his ears. We admitted him the night before because he needed to fast for at least 6 hours before surgery and that is not possible for River. River usually can only make it 30 minutes - 1 hour of fasting before his blood sugar drops below 70. At midnight they started a dextrose IV to keep his blood sugar stable while the turned off his g-tube feeds. His blood sugar stayed stable during and after the switch to IV fluids!! I was worried that River would have trouble sleeping in the hospital but he slept like a log, even through several blood draws to test his blood sugar. Mom and Dad on the other hand, slept on the couch in the room and didn't get much sleep. His surgery was at 7am in the morning and he didn't even cry when the nurses took him away to give him the anesthesia. He is so independent and completely fine without mommy and daddy :( The surgery lasted about 20 minutes and he did great! We got discharged from the hospital later that morning. We had to get discharged from his original room since he was admitted as an inpatient. He has adjusted to the tubes wonderfully and his sinus congestion that he's had for the past couple of weeks is finally clearing up.
We took River up to the mall to see Santa and ride the Choo Choo train. He had so much fun riding the train and rode it all by himself. He even clapped when the ride was over, it was adorable! I posted a little video of the end so you can see the end of his train ride and applause.
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